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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Goldenhar Syndrome Support Network Society

a/k/a: GSSN

Address

PO Box 751112
Las Vegas, NV 89136-1112
USA

Fax

702-341-5351

800 Number

888-486-1209

Email Address

info@ameriface.org

Website

http://www.goldenharsyndrome.org

The Goldenhar Syndrome Support Network is a program of Ameriface, a GSSN is a non-profit organization dedicated to providing support and information to families and individuals affected by Goldenhar syndrome and its associated conditions. Goldenhar syndrome, often used synonymously with oculo-auriculo-vertebral (OAV) spectrum, is a rare disorder that is apparent at birth (congenital). It is characterized by a wide spectrum of symptoms and physical features that may vary greatly in range and severity from case to case. However, such abnormalities tend to involve the cheekbones, jaws, mouth, ears, eyes, and/or bones of the spinal column (vertebrae).

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