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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Dercum's Support
Address
PO Box 350
Somis, CA 93066
Phone
805-386-3125
Fax
--
800 Number
--
TDD
--
Email Address
dercumdata@aol.com
Website
The Dercum's Support, a non-profit, self-help organization, exists to disseminate information on Dercum's disease and support the search for a cause and, ultimately, a cure. Through its Web site, the organization shares information with patients, their families and friends, researchers, medical professionals, and the general public. Dercum's disease is a disorder partially characterized by pressure of fatty deposits on nerves, resulting in weakness and pain. It occurs in both sexes. Weight gain is caused by whatever causes the other symptoms of Dercum's disease. Often, the weight gain is very large and very rapid. "Dercum's fat" is not the same metabolically as "normal fat". The tumors are often angiolipomas, meaning they contain blood. Tumors can and do occur in ALL parts of the body. Arthritis, stiffness and joint pain are common. Many sufferers are severely incapacitated as the disease progresses.
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