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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Peutz Jeghers Syndrome Online Support Group






800 Number




Email Address


The Peutz-Jeghers Syndrome Online Support Group is a free e-mail support group for patients, families, friends, researchers, and physicians. It provides a forum to discuss clinical and non-clinical issues and advances pertaining to Peutz-Jeghers syndrome. This is a rare, inherited disorder characterized by multiple, initially benign nodular growths of the GI tract and an increased risk of cancer throughout the body. Discussion topics include patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices. The group is one of several co-sponsored by the Association of Cancer Online Resources.

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