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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Worster-Drought Syndrome Support Group

a/k/a: WDSSG

Address

209-211 City Road
London, EC1V 1JN
United Kingdom

Phone

020-760-88700

Email Address

National.Contact@wdssg.org.uk

Website

http://www.wdssg.org.uk

The Worster-Drought Syndrome Support Group (WDSSG) offers support to families affected by Worster-Drought syndrome; raises awareness of this disease among health professionals and other interested individuals; and supports and promotes research. Worster-Drought syndrome is a form of cerebral palsy sometimes also known as congenital supra bulbar paresis. It is associated with a range of problems that include difficulties with chewing and swallowing, speech, and coordination. Because of the varying nature of symptoms, diagnosis is often made quite late. The syndrome is named for a physician who studied this disease in the early 1950s. Formed in 1994, the support group is based in the United Kingdom but sends information, including a newsletter, around the world.

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