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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Parents of Infants and Children with Kernicterus (P.I.C.K.)

a/k/a: P.I.C.K.


One W. Superior Street
Suite 2410
Chicago, IL 60610



800 Number




Email Address


The mission of Parents of Infants and Children with Kernicterus (P.I.C.K.) is to prevent kernicterus and trace its causes, provide information and support to families, identify effective therapies and treatment, and seek out and fund promising research. Kernicterus is a rare neurological disorder that affects newborn infants of both sexes in equal numbers. It occurs more often in premature infants, and is characterized by hyperbilirubinemia (excessive levels of bilirubin in the blood) during infancy. Bilirubin is a byproduct of the natural breakdown of hemoglobin in red blood cells. Established in 2001, this voluntary organization provides services to patients and their families, health professionals, and the general public.

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