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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Juvenile Scleroderma Network, Inc.
a/k/a: JSDN
Address
1204 W. 13th Street
San Pedro, CA 90731
USA
Phone
310-519-9511
Fax
310-519-9511
800 Number
866-338-5892
TDD
--
Email Address
jsdinfo@jsdn.org
Chapters
3
Website
The Juvenile Scleroderma Network (JSDN), a voluntary organization, invites family's world-wide to become involved and help provide support and friendship to families who have a child with juvenile scleroderma. It also serves families in Canada, South America, Europe, the United Kingdom, and Australia. Scleroderma is a connective tissue disease involving skin, blood vessels, and the immune system. Children who have juvenile scleroderma may experience confusion about their illness, anger about changes in their appearance, and fear of the unknown. For parents to be able to help their children deal with such feelings, it is important for them to have a support network to exchange information and find emotional reassurance. The network's services include advocacy, support groups for parents and children, networking, publications, and research. Spanish language materials are available.
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