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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Familial Dysautonomia Hope Foundation

a/k/a: FD Hope

Address

121 S. Estes Dr., Suite 205D
Chapell Hill, NC 27514
USA

Phone

919-969-1414

800 Number

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TDD

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Email Address

info@fdhope.org

Chapters

5

Website

http://www.fdhope.org

The mission of the Familial Dysautonomia Hope Foundation (FD Hope), a voluntary, non-profit organization established in 2001, is to expand and accelerate scientific research to find a cure for familial dysautonomia while improving the lives of the children and adults who are challenged by the disease. Familial dysautonomia is a rare genetic disorder of the autonomic nervous system that primarily affects people of Eastern European Jewish heritage. It is characterized by diminished sensitivity to pain, lack of overflow tearing in the eyes, and unusual fluctuations of body temperature and blood pressure. Familial Dysautonomia Hope provides publications, advocacy, and patient networking services.

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