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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Hemochromatosis Information Center
a/k/a: HF
Address
P.O. Box 675
Taylors, SC 29687
Phone
864-292-1175
Fax
864-292-1878
800 Number
888-565-4766
TDD
--
Email Address
patientservices@irondisorders.org
Chapters
1
Website
http://www.hemochromatosis.org
The Hemochromatosis Information Center is a national, non-profit organization dedicated to finding a cure for hemochromatosis. Hereditary hemochromatosis (HH) is a metabolic disorder characterized by increased absorption of dietary iron. Without appropriate treatment, excessive iron may accumulate in the liver, heart, pancreas, and other organs, causing organ dysfunction and tissue damage. Established in 1971, the foundation is committed to fostering understanding of the disease by supporting activities that encourage research; advising legislative and regulatory bodies at the local and federal levels; increasing general awareness of hemochromatosis to help ensure early diagnosis and prompt treatment; and improving the quality of life for affected individuals and family members. The foundation also establishes local chapters; sponsors discussion groups where people share their experiences; and provides physician referrals, general information, and local contacts. Educational materials produced by the foundation include a brochure series.
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