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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Kennedy's Disease Association

a/k/a: KDA


P.O. Box 1105
Coarsegold, CA 93614-1105





800 Number




Email Address


The Kennedy's Disease Association is a non-profit corporation established in 2000 that is staffed entirely by volunteers, all of whom are Kennedy's disease patients, carriers, spouses, caregivers, family members or friends. The goals of the association include sharing information about Kennedy's disease with those who seek it, creating a support system for those living with Kennedy's disease, increasing public awareness of this disease and its effects upon families, raising funds for research, and increasing awareness of Kennedy's disease in the medical community. Kennedy's disease is a genetic disorder that causes the death of nerve cells in the spinal cord and brainstem. It usually first appears between the ages of 30 and 50, mostly among men.

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