You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Advocate For Glycoprotein Storage Diseases

a/k/a: ISMRD


20880 Canyon View Drive
Saratoga, CA 95070

Email Address


The International Advocate For Glycoprotein Storage Diseases (ISMRD) is a 501(c)(3) organization based in the United States and a leading advocate for families worldwide affected by glycoprotein and related storage diseases. Through partnerships built with medicine, science and industry, it seeks to detect and cure these diseases, and to provide a network of support and information. Its mission is to advocate for people whose lives are affected by diseases that include alpha and beta mannosidosis, aspartylglucosaminuria, fucosidosis, galactosialidosis, Schindler disease, and mucolipidosis I and II.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.