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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Xeroderma Pigmentosum Support Group

a/k/a: XPSG

Address

Instron House
Coronation Road
Bucks, HP12 3SY
United Kingdom

Phone

440-149-4456192

Email Address

info@xpsupportgroup.org.uk

Website

http://xpsupportgroup.org.uk/

The Xeroderma Pigmentosum Support Group (XPSG) provides support and encouragement to patients and families affected by xeroderma pigmentosum, a rare genetic disorder that causes extreme sensitivity to the sun's ultraviolet rays. Unless patients with XP are protected from sunlight, their skin and eyes may be severely damaged. This damage may lead to cancers of the skin and eye. The XP Support Group raises funds for XP research, gives grants for UV protective products, provides public education on the topic, and assists families to attend Camp Sundown, a camp in New York State and it has it's own annual night time camp in February called the Owl Patrol.

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