You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Adenoid Cystic Carcinoma Organization International

a/k/a: ACCOI


P.O. Box 112186
Tacoma, WA 98411





800 Number




Email Address


The Adenoid Cystic Carcinoma Organization International (ACCOI) provides education about adenoid cystic carcinoma, information on treatment and treatment facilities, current research updates. It helps to fund ACC research and provides an online support group for ACC patients and caregivers. Adenoid cystic carcinoma is a relatively rare form of cancer that most commonly develops in the salivary glands or other regions of the head and neck, but can occur in other parts of the body as well. Services of this non-profit organization include patient networking, support groups, and patient/physician education.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.