You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Tom Wahlig Foundation

Address

Büro Veghestrasse 22
Münster, 48149
Germany

Phone

492-512-0079120

Fax

492-512-0079122

800 Number

--

Email Address

info@hsp-info.de

Website

http://www.hsp-info.de

The Tom Wahlig Foundation is an independent welfare foundation whose aim is to support research in the field of familial spastic spinal paralysis as well as provide support for patients and families affected by this disease. Familial spastic spinal paralysis refers to a group of rare inherited neurological spinal cord disorders characterized by progressive weakness (paraplegia) and increased muscle tone and stiffness (spasticity) of leg muscles. Serving people in Germany, the UK, France and Austria, the foundation will sponsor symposiums to support researchers.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .