The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Genetic Support Network of Victoria
Royal Childrens Hospital
Flemington Rd 10th Floor
Parkville Victoria, 3052
The Genetic Support Network of Victoria provides an information, education, support, and advocacy network to empower people to overcome the challenges presented to them by genetic conditions. It provides services, such as facilitating the exchange of information and resources, for existing genetic support groups, and it also aids in the development of new groups. It refers patients and families to support groups for their specific disease. The network was established in 1996.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.