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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Beckwith-Wiedemann Family Forum

a/k/a: BWFF

Address

105 Yehudah St. Apt 2
Modi'in, 71700
Israel

Phone

011-972-89714544

Fax

800 Number

TDD

Email Address

julie@netor.co.il

Website

http://www.beckwith-wiedemann.info/

The Beckwith-Wiedemann Family Forum (BWFF) was created as a way for people interested in BWS to get support and share information. Beckwith-Wiedemann syndrome is a rare genetic disorder characterized by a broad spectrum of symptoms and findings that may include enlargement of certain abdominal organs, advanced bone age, and greater than normal length and weight at birth. The major goals of the Beckwith-Wiedemann Family Forum are to provide a place where people interested in BWS can find information quickly, to provide a forum for interested people to meet on the Internet to discuss BWS related issues, and to let newly affected families of BWS know they are not alone.

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