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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Canavan Foundation

a/k/a: CF

Address

450 West End Avenue, #6A
New York, NY 10024
USA

Phone

212-873-4640

Fax

212-873-7892

800 Number

877-422-6282

Email Address

info@canavanfoundation.org

Website

http://www.canavanfoundation.org

The Canavan Foundation (CF) is a non-profit organization founded in 1992 by parents and friends of children with Canavan disease. The mission of the Canavan Foundation is to provide the latest information (including a list of testing sites) for the at-risk population, educate medical and other professional communities, and to support research. Canavan disease is a rare, inherited neurological disorder caused by an enzyme deficiency and characterized by poor muscle tone, progressive mental decline, poor head control, and/or blindness. Symptoms usually become apparent when an infant is three to nine months old. Currently there is no cure for the disease.

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