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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Federacion Espanola de Enfermedades Raras

a/k/a: FEDER

Address

Avda. San Francisco Javier
9 Pl. 10 - M. 24
Sevilla, 41018
Spain

Phone

003-495-4989892

Fax

003-495-4989893

Email Address

comunicacion@enfermedades-raras.org

Chapters

88

Website

http://www.enfermedades-raras.org

The aims of FEDER are to enhance awareness and recognition of rare disorders; improve the medical, social, and financial care that patients receive; call on appropriate authorities to set up nationwide reference, diagnostic, and therapeutic centers for each disease or group of diseases; promote and support initiatives that encourage prevention, research, and collaboration; develop and implement orphan drug regulations; and defend patient rights and interests.

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