You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Federacion Espanola de Enfermedades Raras

a/k/a: FEDER


Avda. San Francisco Javier
9 Pl. 10 - M. 24
Sevilla, 41018





Email Address




The aims of FEDER are to enhance awareness and recognition of rare disorders; improve the medical, social, and financial care that patients receive; call on appropriate authorities to set up nationwide reference, diagnostic, and therapeutic centers for each disease or group of diseases; promote and support initiatives that encourage prevention, research, and collaboration; develop and implement orphan drug regulations; and defend patient rights and interests.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .