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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Pachyonychia Congenita Project


2386 East Heritage Way, Suite B
Salt Lake City, UT 84109





800 Number


Email Address


The Pachyonychia Congenita Project is a voluntary, non-profit 501(c)(3) organization focused on finding a cure for pachyonychia congenitaI, a hereditary genetic skin disorder characterized by blisters on the feet and hands, thickened fingernails and toenails, and other painful symptoms. The organization funds research grants, sponsors scientific and patient meetings, offers patient networking, as well as educational services for both patients and medical professionals.

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