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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Oculo-Dento-Digital Dysplasia Support Group

a/k/a: ODDDSG

Address

8810 Orchard Road
Pikesville, MD 21208

Phone

410-580-0882

Email Address

aboutus@odddsupportgroup.com

Website

http://www.odddsupportgroup.com

The Oculo-Dento-Digital Dysplasia Support Group (ODDD) is a non-profit, self-help support group whose main goal is to bring together people with oculo-dento-digital dysplasia. This rare disorder may be inherited as an autosomal dominant trait or it may be caused by a new change in the genes that occurs for no apparent reason (mutation). Signs and symptoms include webbing of the fourth and fifth fingers, an abnormally small transparent part of the eye (microcornea), a slender nose with narrow nostrils, defective tooth enamel, and dry hair that grows slowly. Members of ODDD group exchange information obtained from Web sites, physicians, and their own research.

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