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Ohdo Syndrome Family Network

a/k/a: OSFN


36 Borrowdale Ave
Cheshire, SK8 4QF
United Kingdom



Email Address


The Ohdo Syndrome Family Network is a voluntary health organization located in the UK providing information to patients and their families, healthcare professionals, and the public. Ohdo syndrome, also known as Ohdo blepharophimosis syndrome, is characterized by learning difficulties in conjunction with congenital heart disease, small eye openings (blepharophimosis), drooping eyelids (blepharoptosis), and small teeth. The Ohdo Syndrome Family Network provides support and networking opportunities to parents of affected children. It also seeks to enhance awareness of this syndrome among medical professionals.

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