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Ohdo Syndrome Family Network
a/k/a: OSFN
Address
36 Borrowdale Ave
Gatley
Cheshire, SK8 4QF
United Kingdom
Phone
016-142-88583
Email Address
patseville@btinternet.com
Website
http://uk.groups.yahoo.com/group/ohdosyndrome/?tab=s
The Ohdo Syndrome Family Network is a voluntary health organization located in the UK providing information to patients and their families, healthcare professionals, and the public. Ohdo syndrome, also known as Ohdo blepharophimosis syndrome, is characterized by learning difficulties in conjunction with congenital heart disease, small eye openings (blepharophimosis), drooping eyelids (blepharoptosis), and small teeth. The Ohdo Syndrome Family Network provides support and networking opportunities to parents of affected children. It also seeks to enhance awareness of this syndrome among medical professionals.
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