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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Kharkov Renaissance Foundation For Children With Spinal Muscular Atrophy

a/k/a: KRFCSMA

Address

Gogol Street, 7
Kharkov, 61057
Ukraine

Phone

380-577-313121

Fax

380-503-640673

Email Address

info@csma.org.ua

Website

http://www.csma.org.ua

The Kharkov Renaissance Foundation for Children with Spinal Muscular Atrophy (CSMA) is a non-profit, rare disorder organization located in the Ukraine. The primary goal of CSMA is to protect the rights of patients affected by spinal muscular atrophy (SMA). This is a slowly progressive, inherited muscle-weakness and muscle-wasting disease. CSMA is one of several organizations working collaboratively through the International Alliance for Spinal Muscular Atrophy. It encourages the exchange of information related to SMA around the globe. CSMA works to educate patients and their families through support groups and genetic counseling.

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