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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Gorlin Syndrome Group

a/k/a: GSG


11 Blackberry Way
Lancashire, PR1 9LQ
United Kingdom




The Gorlin Syndrome Group is a rare-disorder organization located in the United Kingdom. Founded in 1992, it has three objectives. The first is to relieve sickness, and to protect and preserve the health of people affected by Gorlin syndrome, a hereditary condition that can affect various organs. Individuals with this syndrome usually have the three main characteristics, which are skin cancers, cysts of the jaw, and pits on the palms and soles of the feet. In addition, other less common complaints may be linked to this syndrome. The second goal of the Gorlin Syndrome Group is to promote the advancement of education of the medical community and the general public. The third is to promote research into the causes, effects, treatments, and management of Gorlin syndrome, and to disseminate the results. The Gorlin Syndrome Group offers patient networking, and support groups among its services.

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