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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Melnick-Needles Syndrome Support Group

a/k/a: MNS Support Group

Address

4, Kivner Lane
Bexhill-On-Sea
East Sussex, TN40 2ST
United Kingdom

Phone

014-242-17790

Fax

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800 Number

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TDD

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Email Address

gill@melnickneedlesyndrome.com

Website

http://www.melnickneedlesyndrome.com

The Melnick-Needles Syndrome Support Group is a voluntary, self-help organization dedicated to helping families of children with Melnick-Needles syndrome (MNS). This is a rare hereditary disorder characterized by abnormal bone development and characteristic abnormalities of the head and face (craniofacial) area. Established in 1994 as an affiliate of Contact a Family, the Melnick-Needles Syndrome Support Group is committed to providing information, assistance, and moral support to member families as well as those whose children have just been diagnosed. The support group also works to raise awareness among professionals and disseminates information concerning treatment options. It enables affected families to share their experiences and resources with one another and works to make contact with other affected families. The Melnick-Needles Support Group provides members with fact sheets on MNS.

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