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Melnick-Needles Syndrome Support Group
a/k/a: MNS Support Group
Address
4, Kivner Lane
Bexhill-On-Sea
East Sussex, TN40 2ST
United Kingdom
Phone
014-242-17790
Fax
--
800 Number
--
TDD
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Email Address
gill@melnickneedlesyndrome.com
Website
http://www.melnickneedlesyndrome.com
The Melnick-Needles Syndrome Support Group is a voluntary, self-help organization dedicated to helping families of children with Melnick-Needles syndrome (MNS). This is a rare hereditary disorder characterized by abnormal bone development and characteristic abnormalities of the head and face (craniofacial) area. Established in 1994 as an affiliate of Contact a Family, the Melnick-Needles Syndrome Support Group is committed to providing information, assistance, and moral support to member families as well as those whose children have just been diagnosed. The support group also works to raise awareness among professionals and disseminates information concerning treatment options. It enables affected families to share their experiences and resources with one another and works to make contact with other affected families. The Melnick-Needles Support Group provides members with fact sheets on MNS.
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