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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Beckwith-Wiedemann Children's Foundation

a/k/a: BWCF

Address

9031 Cascadia Ave
Everett, WA 98208

Phone

425-338-4610

Fax

425-357-8575

Email Address

BWCFKathy@comcast.net

Website

http://www.beckwith-wiedemannsyndrome.org

The Beckwith-Wiedemann Children's Foundation (BWCF) is a non-profit, voluntary organization run by family members of children affected by Beckwith-Wiedemann syndrome (BWS). This is a rare genetic disorder characterized by a wide spectrum of symptoms and findings that vary from case to case. In many affected individuals, findings associated with the syndrome include above-average weight and length at birth or increased growth after birth, an unusually large tongue, enlargement of certain abdominal organs, and/or abdominal wall defects. BWCF's mission is to provide assistance to those affected by Beckwith-Weidemann syndrome though education, conferences, and a telephone support line. BWCF offers assistance with insurance claims and travel to medical facilities for treatment.

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