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Zellweger Baby Support Network
a/k/a: ZBSN
Address
9310 Groundhog Drive
Richmond, VA 23235
Phone
605-642-2072
Fax
605-642-7525
Email Address
pamfreeth@zbsn.org
Chapters
1
Website
The Zellweger Baby Support Network (ZBSN) is national, non-profit organization started by a group of parents whose children were born with Zellweger syndrome. This is a hereditary disorder characterized by a deficiency or absence of peroxisomes in the cells of the liver, kidneys and brain. These are small structures that help rid the body of waste products. Zellweger syndrome may affect brain development and can lead to other problems including an enlarged liver, high levels of iron and copper in the blood, and vision disturbances. The mission of the Zellweger Baby Support Network is to help families whose children are born with Zellweger syndrome and other peroxisomal disorders, and to raise awareness of these rare disorders. ZBSN also hopes to raise funds for research for treatment options and maybe even someday to find a cure.
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