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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Alberta Neurofibromatosis Association

a/k/a: ANA

Address

636 Hunterfield Place NW
Calgary
Alberta, T2K 4L6
Canada

Phone

403-275-4894

800 Number

866-939-2263

Email Address

pam@albertanf.org or cathy@albertanf.org

Chapters

4

Website

http://www.albertanf.org

The Alberta Neurofibromatosis Association (ABNF) is a non-profit organization whose mission is to support individuals and families affected by neurofibromatosis type 1 (NF1) and neurofibromatosis type 2 (NF2); to educate its members, professionals, and the general public about NF; and to support NF research. NF1, also called Von Recklinghausen's disease, is a rare genetic disorder characterized by the development of multiple noncancerous (benign) tumors of nerves and skin (neurofibromas) and areas of abnormally decreased or increased coloration (hypo- or hyperpigmentation) of the skin. NF-2, a much rarer genetic disorder than NF-1, is primarily characterized by benign (noncancerous) tumors of the nerves that transmit sound impulses from the inner ears to the brain (bilateral acoustic neuromas vestibular schwannomas). The characteristic symptoms of NF-2 include balance problems, buzzing or ringing in the ears (tinnitus), and/or gradual hearing loss.

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