The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Adult Polyglucosan Body Disease Research Foundation
8 West 37th Street
New York, NY 10018
The Adult Polyglucosan Body Disease Research Foundation (APBDRF) is the only national non-profit health organization dedicated solely to finding the cause and cure for adult polyglucosan body disease (APBD). APBDRF strives to be the leading charitable funder and advocate of research worldwide. APBD is a fatal, neurodegenerative disease that attacks nerve cells and pathways in the brain. APBDRF's mission is to improve the diagnosis and treatment of APBD, support individuals and families affected by the disease, and increase awareness of APBD among health professionals and the public. Their ultimate goal, and the heart of their program, is to find the underlying cause as well as a cure for APBD and its complications through the support of research, education, and patient services.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.