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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Sandhoff Disease Informational Website

a/k/a: SHD

Address

8825 Hastings Blvd.
Hastings, FL 32145

Phone

386-202-0018

Email Address

admin@sandhoff.org

Website

http://www.sandhoffdisease.webs.com

The Sandhoff Disease Informational Website is dedicated to providing accurate information, support and guidance for parents, families and health care workers dealing with or treating children with Sandhoff Disease. Sandhoff Disease is a rare inherited lipid storage disorder resulting in the progressive deterioration of the central nervous system. A deficiency of the enzyme hexosaminidase (beta-subunit) results in the accumulation of certain fats (lipids or fatty acids) in the brain and other organs of the body. Sandhoff Disease is a severe form of Tay-Sachs Disease and is not limited to any particular ethnic group.

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