You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Retina International

a/k/a: RI

Address

Ausstellungsstrasse 36
CH-8005
Z├╝rich,
Switzerland

Phone

410-444-441077

Fax

410-444-441070

Email Address

christina.fasser@retina-international.org

Website

http://www.retina-international.org

The Retina International is a non-profit, umbrella association of 34 national societies each of which is formed by people with Retinitis Pigmentosa (RP), Usher Syndrome, Macular Degeneration and allied retinal dystrophies, their families and friends. Retina International is dedicated to promoting public awareness, stimulating research and providing information on these diseases. Retinitis pigmentosa (RP) is one name for a large group of inherited vision disorders that causes progressive degeneration of the retina of the eyes. Usher syndrome is a rare inherited disorder primarily characterized by deafness due to an impaired ability of the auditory nerves to transmit sensory input to the brain (sensorineual hearing loss) accompanied by retinitis pigmentosa. Macular degeneration is a degenerative disease affecting the macula or center of the retina of the eye. It results in progressive loss of central vision. Occurring most often among older people, it is the most common cause of vision loss in people over age 55. It is believed that both genetic and environmental factors influence this disease.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .