You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Tarlov Cyst Disease Foundation

a/k/a: TCDF


326 Norton Rd.
Knoxville, TN 37920





Email Address


The Tarlov Cyst Disease Foundation is a volunteer-based, non-profit organization dedicated to the research, improved diagnosis and development of successful treatments and outcomes for symptomatic Tarlov cysts. The Foundation is incorporated exclusively for scientific, educational, and charitable purposes that seek to improve the level of understanding, diagnosis and treatment of Tarlov cysts. Please visit the Foundation's website at and review the Tarlov Cyst Information page for definition and description of symptomatic Tarlov cysts, possible causes, symptoms, diagnosis, treatment and prognosis.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .