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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Abetalipoproteinemia Collaboration Foundation

a/k/a: ACF


P.O. Box 8293
Cincinnati, OH 45208





Email Address


The Abetalipoproteinemia Collaboration Foundation (ACF) is a voluntary organization with many initiatives. These include providing families and professionals with information about abetalipoproteinemia, sponsoring a regular international symposium for family networking as well as professional collaboration, promoting and funding research to gain further insight and treatment recommendations as well as supporting multidisciplinary research and treatment centers for the advancement of clinical management. Abetalipoproteinemia is a rare genetic condition that involves the body's inability to absorb and transport fat (lipids). Some of the most significant consequences relate to the body not being able to absorb fat-soluble vitamins. Without these vitamins, serious problems arise with an individual's eyesight and in their nervous system.

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