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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Lymphangiomatosis & Gorham's Disease Alliance

a/k/a: LGDA

Address

19919 Villa Lante Place
Boca Raton, FL 33434

Phone

561-441-9766

Email Address

info@lgdalliance.org

Website

http://www.lgdalliance.org/

The Lymphangiomatosis & Gorham's Disease (LGD) Alliance is a non-profit foundation dedicated to patient support, advocacy, and the finding of effective treatments and cures for those affected by the rare lymphatic malformations known as lymphangiomatosis and Gorham's disease. The mission of the LGD Alliance is to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure for these diseases. Gorham's disease is an extremely rare bone disorder. Normally bones replenish themselves through a cycle of bone dissolution and regrowth. In people with Gorham’s disease bone loss occurs and progresses in certain areas of the body but no new bone growth takes place. This may occur in just one bone or may spread to adjacent areas of the affected bone.

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