You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Families of Spinal Muscular Atrophy

a/k/a: Families of SMA

Address

925 Busse Road
Elk Grove Village, IL 60007

Phone

847-367-7620

800 Number

800-886-1762

TDD

--

Email Address

sma@fsma.org

Chapters

24

Website

http://www.fsma.org/

The Families of Spinal Muscular Atrophy (SMA) is a voluntary-driven, non-profit organization dedicated solely to eradicating SMA by promoting and supporting research, helping families cope through informational programs and support, and educating the public and the medical community about SMA. Spinal muscular atrophy is a motor neuron disease. Motor neurons are nerve cells in the spinal cord, which send out nerve fibers to muscles throughout the body. The motor neurons affect the voluntary muscles that are used for activities such as crawling, walking, head and neck control, and swallowing. Established in 1984 by a group of concerned parents, Families of Spinal Muscular Atrophy now has more than 24 chapters worldwide and more than 5,000 members families and is a founding member of the International Alliance for Spinal Muscular Atrophy. FSMA continues to be at the forefront of research, funding, both basic science researches, drug testing programs (Project Cure SMA) and its own drug discovery efforts. The organization supports several languages including Spanish, Italian, German, Polish, Greek, and Yiddish.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.