The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
531 Route 22 East #244
Whitehouse Station, NJ 08889
The Accord Alliance (AA) is a voluntary organization whose mission is to promote comprehensive and integrated approaches to healthcare that enhance the health and well-being of people and families affected by disorders of sex development (DSD) by fostering collaboration among all stakeholders. Accord Alliance provides a web-based clearinghouse of educational and informational resources to meet diverse stakeholder information needs and support the healthcare decision-making processes of providers, patients, parents, payers, and researchers working to improve health care for DSD. They are establishing collaborative relationships with emerging interdisciplinary DSD teams and developing a transferable model of care, clinical guidelines and protocols, and decision aids to support providers in their efforts to deliver culturally competent, patient-centered care that engages the patient and family in understanding DSD and managing healthcare and social support services. Accord Alliance encourages rapid identification and sharing of lessons learned and best-practice approaches across their collaborative teams and other emerging teams by supporting symposiums, webinars and other means of information sharing. DSD, also commonly referred to as "intersex", is a grouping of congenital conditions in which development of chromosomal, gonadal, or anatomic sex is atypical.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.