You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Gallaudet University Genetics Program

a/k/a: GUGP


800 Florida Ave. NE
Genetics Program
Washington, DC 20002





800 Number


Email Address


The Gallaudet University Genetics Program is a national service organization and clinical facility dedicated to promoting professional and public education concerning hearing loss and supporting research into hereditary deafness. Established in 1984, the Program provides direct clinical genetic evaluation and counseling to deaf and hard of hearing individuals and their families. In addition, the Center provides educational services including lectures and workshops; performs genetic research into deafness; and provides referrals for support groups and medical assistance. The Program also produces educational and support materials including brochures, pamphlets, and fact sheets.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .