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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

LGS Foundation, Inc.

a/k/a: LGSF

Address

192 Lexington Avenue
New York, NY 10016

Phone

718-374-3800

Email Address

christina@lgsfoundation.org

Website

http://www.lgsfoundation.org

The LGS Foundation (Lennox-Gastaut Syndrome) is a voluntary, non-profit organization dedicated to providing information and support for Lennox-Gastaut syndrome (LGS) while raising funds to pursue additional research and services for LGS families. LGS is a rare disorder that typically becomes apparent during infancy or early childhood. The disorder is characterized by frequent episodes of uncontrolled electrical disturbances in the brain (seizures) and, in many cases, abnormal delays in the acquisition of skills that require the coordination of mental and muscular activity (psychomotor retardation). Individuals with the disorder may experience several different types of seizures. Lennox-Gastaut Syndrome may be due to or occur in association with a number of different underlying disorders or conditions.

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