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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Scleromyxedema Support Group

a/k/a: SSG

Address

10 Keenan Place
Garden City, NY 11530

Phone

516-384-1405

Email Address

timkosally@yahoo.com

Website

http://www.scleromyxedema.net

The Scleromyxedema Support Group is an active web support group where those suffering from Scleromyxedema and their loved ones can go for support, education and information. Scleromyxedema is a rare skin disorder characterized by the rapid growth of fibroblasts (a type of connective tissue cell) and mucin deposition in the skin (dermis), in the absence of thyroid disease. Mucins, are proteins that make the skin more viscous.

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