You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

**IMPORTANT**

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Acromegaly Community

a/k/a: Acromegaly Community

Address

432 Amherst Street, 2nd Floor
Buffalo, NY 14207

Phone

716-844-8780

Email Address

wayne@acromegalycommunity.com

Website

http://www.acromegalycommunity.com

The Acromegaly Community is a voluntary, non-profit organization whose mission is to provide an emotional and communal support network for people touched by acromegaly. They offer a central location of medical information on issues including surgery, medication, radiation, and post-diagnosis support. Most importantly, they provide a network of emotional support for acromegaly patients, as well as their friends and family. Acromegaly is a rare, slowly progressive chronic disorder characterized by an excess of growth hormone. Symptoms include abnormal enlargement in bones of the arms, legs, and head. The bones in the jaws and in the front of the skull are typically the most affected. Acromegaly may also cause thickening of the soft tissues of the body, particularly the heart and accelerated growth leading to tall stature. In most cases, acromegaly is caused by the growth of a benign tumor (adenoma), affecting the pituitary gland.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

 
Copyright ©2014 NORD - National Organization for Rare Disorders, Inc. All rights reserved.