The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Canadian PBC Society
4936 Yonge Street
Toronto, M2N 6S3
The Canadian PBC Society is a non-profit, national organization with regional groups made up of patients and other concerned individuals. Their mission is to provide support and encouragement, education, information, and fundraising for PBC-related medical research. A major goal of the Society is to support and fund research in treatment and basic causation. We are currently supporting research into the Genetics of PBC- this may open up a new avenue of prevention, cause, treatment and possibly a cure. PBC is a slowly progressive bile duct disease, which results from chronic inflammation of the small intrahepatic bile ducts. For some, the inflammation leads to bile duct loss and liver scarring which may, after many years, become extensive and lead to cirrhosis. It is not yet known what causes PBC.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.