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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

LAL Solace, Inc.

a/k/a: LAL Solace

Address

191 Barnstable Court
Harvest, AL 35749

Phone

256-425-2638

Email Address

lalsolace@gmail.com

Website

http://www.lalsolace.org

LAL Solace is a non-profit, voluntary organization whose mission is to provide support for patients, families, and healthcare providers of early and late onset lysosomal acid lipase (LAL) deficiency. LAL Solace brings patients and their families together to share experiences, knowledge and compassion. LAL deficiency (commonly known as Wolman disease or cholesteryl ester storage disease) is a rare genetic disorder characterized by complete absence of an enzyme known as lysosomal acid lipase (LIPA or LAL). This enzyme is required to breakdown (metabolize) certain fats (lipids) in the body. Without the LIPA enzyme, certain fats may abnormally accumulate in the tissues and organs of the body causing a variety of symptoms, including bloating or swelling of the stomach, vomiting, and significant enlargement of the liver or spleen. Life-threatening complications often develop during early childhood.

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