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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Glut1 Deficiency Foundation

a/k/a: G1D Foundation


PO Box 943
Westfield, IN 46074-0943



Email Address


Glut1 Deficiency Foundation is a voluntary, non-profit organization whose mission is to give help and hope to the GLUT1 deficiency community while working together for a cure. Glut1 Deficiency Foundation is dedicated to educating others about GLUT1 deficiency by creating a forum for sharing support, experiences, resources, and information between patients, families, and healthcare professionals; increasing awareness of and advocacy for GLUT1 deficiency; and supporting and funding researchers as they work for a cure. GLUT1 deficiency is a genetic disorder that impairs brain metabolism. Symptoms may include developmental delay, intellectual disability, and other neurological problems.

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