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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Parent Project Muscular Dystrophy
a/k/a: PPMD
Address
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
USA
Phone
201-944-9985
Fax
201-944-9987
800 Number
800-714-5437
TDD
--
Email Address
info@parentprojectmd.org
Chapters
10
Website
http://www.parentprojectmd.org
The Parent Project Muscular Dystrophy (formerly the Parent Project for Muscular Dystrophy Research) is a non-profit national health organization founded in 1994 by parents of children with Duchenne and Becker muscular dystrophy. PPMD's mission is to improve the treatment, quality of life, and long-term outlook for all individuals affected by Duchenne muscular dystrophy through research, advocacy, education, and compassion. PPMD seeks to ensure that all families, caregivers, and healthcare professionals have access to current information about treatment and care options for children with DMD/BMD. It encourages health and human services policy makers to afford the same priority to DMD/BMD as to other disorders of similar incidence and prevalence. PPMD seeks to collaborate with the international community to assure that the voices of people with DMD/BMD are heard.
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