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Velo-Cardio-Facial Syndrome Educational Foundation
a/k/a: VCFSEF, Inc
P.O. Box 12591
Dallas, TX 75225
The Velo-Cardio-Facial Syndrome Educational Foundation is a national, non-profit, self-help organization dedicated to providing information and support to individuals affected by velo-cardio-facial syndrome, their families, physicians and other caregivers. VCFS -- also known as the Shprintzen syndrome, and DiGeorge sequence -- is caused by the deletion of a small segment of the long arm of chromosome 22 (specified as 22q11.2 deletion), and is one of the most common genetic disorders in humans. Velo-cardio-facial syndrome is characterized by cleft palate, heart abnormalities, learning disabilities, and over 180 other clinical findings. The foundation is committed to offering family programs, providing parent-to-parent networking, distributing educational materials about velo-cardio-facial syndrome, publishing a periodic information newsletter, and hosting an annual conference for the lay and professional members.
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