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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Velo-Cardio-Facial Syndrome Educational Foundation

a/k/a: VCFSEF, Inc

Address

P.O. Box 12591
Dallas, TX 75225
USA

Phone

214-360-4740

TDD

--

Email Address

info@vcfsef.org

Website

http://www.vcfsef.org

The Velo-Cardio-Facial Syndrome Educational Foundation is a national, non-profit, self-help organization dedicated to providing information and support to individuals affected by velo-cardio-facial syndrome, their families, physicians and other caregivers. VCFS -- also known as the Shprintzen syndrome, and DiGeorge sequence -- is caused by the deletion of a small segment of the long arm of chromosome 22 (specified as 22q11.2 deletion), and is one of the most common genetic disorders in humans. Velo-cardio-facial syndrome is characterized by cleft palate, heart abnormalities, learning disabilities, and over 180 other clinical findings. The foundation is committed to offering family programs, providing parent-to-parent networking, distributing educational materials about velo-cardio-facial syndrome, publishing a periodic information newsletter, and hosting an annual conference for the lay and professional members.

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