The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Benign Essential Blepharospasm Research Foundation, Inc.
PO Box 12468
Beaumont, TX 77726-2468
The Benign Essential Blepharospasm Research Foundation (BEBRF) is a 501 (c)(3) national, voluntary health organization that was formed to promote research into the cause, treatment, and potential cure of benign essential blepharospasm (BEB) and other disorders of the facial musculature. BEB is characterized by intermittent, involuntary contractions or spasms of the muscles around the eyes. In some cases, an inability to open the eyelids due to involuntary muscle spasms may result in functional blindness. Established in 1981, BEBRF provides encouragement to affected individuals and their families through state coordinators and local support groups. District directors coordinate activities in their regions and direct affected individuals to medical centers where these conditions are treated. BEBRF also acts as a clearinghouse for information on BEB, Meige's syndrome, and hemifacial spasm and distributes materials including brochures, bimonthly newsletters, and physician reprint articles.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and that credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions are strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.