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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Li-Fraumeni Syndrome International Registry

a/k/a: DFCI

Address

450 Brookline Ave.
Boston, MA 02215-5450

Phone

617-632-3000

Fax

617-632-3161

800 Number

800-828-6622

TDD

617-632-5330

Email Address

Dana-FarberContactUs@dfci.harvard.edu

Chapters

1

Website

http://www.dfci.harvard.edu

The Li-Fraumeni Syndrome International Registry (DfCI) is a non-profit health organization dedicated to compiling data concerning families with Li-Fraumeni syndrome and providing them with information regarding surveillance and intervention options. Li-Fraumeni syndrome is a familial disorder consisting of the appearance of early breast cancer. Established in 1969, the registry provides referrals to genetic counseling and other services and works to educate affected families and healthcare professionals. It provides a variety of educational and support materials, including a regular newsletter, videotapes concerning genetic testing, brochures, and fliers.

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