You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Organic Acidaemias UK

a/k/a: OAUK


5, Saxon Road
Middlesex, TW15 1QL
United Kingdom





800 Number




Email Address


The Organic Acidaemias UK is a contact group for parents of children with inherited genetic diseases of protein metabolism of single or groups of amino acids. Examples of disorders are methylmalonic acidaemia, maple syrup urine disease, propionic acidaemia, isovaleric acidaemia, argininosuccinic acidaemia, gluteric acidaemia, hydroxymethylgluteric acidaemia and ethyl-malonic-adipic aciduria. The group offers telephone support.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .