You are here: Home / Rare Disease Information / Patient Organizations Database

Search Patient Organizations

Enter organization name or disease name to search for organizations that help people with rare diseases.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Digestive Disease National Coalition

a/k/a: DDNC


507 Capitol Court, NE
Suite 200
Washington, DC 20002





800 Number




Email Address


The Digestive Disease National Coalition (DDNC) is a non-profit, voluntary organization dedicated to promoting federal investment in biomedical research, representing the digestive disease community in the public arena; and serving as a resource for consumer-directed educational information. Established in 1978, DDNC encompasses 27 patient and professional organizations concerned with diseases of the digestive tract. It provides patient networking services and has several educational materials such as brochures and pamphlets on digestive disorders.

0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.

Copyright ©2015 NORD - National Organization for Rare Disorders, Inc. All rights reserved.
The following trademarks/registered service marks are owned by NORD: NORD, National Organization for Rare Disorders, the NORD logo, RareConnect. .