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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

International Fanconi Anemia Registry

a/k/a: IFAR

Address

Rockefeller University
c/o Arleen Auerbach Ph.D.
New York, NY 10021

Phone

212-327-8000

Fax

212-327-7974

800 Number

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TDD

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Email Address

pubinfo@rockefeller.edu

Website

http://lab.rockefeller.edu/smogorzewska/ifar/

The goal of the International Fanconi Anemia Registry (IFAR) is to obtain clinical and genetic information on patients with Fanconi anemia, in order to learn how to optimize growth and development of affected children and to increase understanding of this rare syndrome. Fanconi anemia is an autosomal recessive syndrome associated with chromosomal instability, variable skeletal and other congenital abnormalities, bone-marrow failure, and predisposition to malignancy, particularly acute myelogenous leukemia and squamous cell carcinomas.

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