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Eosinophilic Fasciitis

Abstract

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NORD is very grateful to Lars E. French, Doctor of Medicine, Chairman, Department of Dermatology, Zurich University Hospital, Switzerland, for assistance in the preparation of this report.

Synonyms of Eosinophilic Fasciitis

Shulman syndrome

Disorder Subdivisions

No subdivisions found.

General Discussion

Eosinophilic fasciitis is a rare disorder characterized by inflammation of the tough band of fibrous tissue beneath the skin (fascia). The arms and legs are most often affected. Inflammation is caused by the abnormal accumulation of certain white blood cells including eosinophils in the fascia. Eosinophilic fasciitis eventually causes the skin to swell and slowly thicken and harden (induration). The disorder most commonly affects middle-aged adults. The exact cause of eosinophilic fasciitis is unknown. Some researchers believe that eosinophilic fasciitis is a variant of scleroderma (systemic sclerosis), an autoimmune connective tissue disorder characterized by hardening of the skin.

Organizations related to Eosinophilic Fasciitis

American Autoimmune Related Diseases Association, Inc.
- 22100 Gratiot Ave.
- Eastpointe, MI 48021
- Phone #: 586-776-3900
- 800 #: 800-598-4668
- e-mail: aarda@aarda.org
- Home page: http://www.aarda.org/
American Partnership for Eosinophilic Disorders
- PO Box 29545
- Atlanta, GA 30359
- Phone #: 713-493-7749
- 800 #: N/A
- e-mail: N/A
- Home page: http://www.apfed.org
AutoImmunity Community
- Phone #: N/A
- 800 #: N/A
- e-mail: moderator@autoimmunitycommunity.org
- Home page: http://www.autoimmunitycommunity.org
Campaign Urging Research for Eosinophilic Disease (CURED)
- PO Box 32
- Lincolnshire, IL 60069
- Phone #: 847-361-3292
- 800 #: N/A
- e-mail: ellyn@curedfoundation.org
- Home page: http://www.curedfoundation.org
Centers for Disease Control and Prevention
- 1600 Clifton Road NE
- Atlanta, GA 30333
- Phone #: 404-639-3534
- 800 #: 800-232-4636
- e-mail: cdcinfo@cdc.gov
- Home page: http://www.cdc.gov/
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Phone #: 301-251-4925
- 800 #: 888-205-2311
- e-mail: N/A
- Home page: http://rarediseases.info.nih.gov/GARD/
International Scleroderma Network
- 7455 France Ave So #266
- Edina, MN 55435-4702
- Phone #: 952-583-5735
- 800 #: 800-564-7099
- e-mail: isn@sclero.org
- Home page: http://www.sclero.org
Madisons Foundation
- PO Box 241956
- Los Angeles, CA 90024
- Phone #: 310-264-0826
- 800 #: N/A
- e-mail: getinfo@madisonsfoundation.org
- Home page: http://www.madisonsfoundation.org
NIH/National Institute of Allergy and Infectious Diseases
- Office of Communications and Government Relations
- 6610 Rockledge Drive, MSC 6612
- Bethesda, MD 20892-6612
- Phone #: 301-496-5717
- 800 #: 866-284-4107
- e-mail: ocpostoffice@niaid.nih.gov
- Home page: http://www.niaid.nih.gov/

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