0-9 - A - B - C - D - E - F - G - H - I - J - K - L - M - N - O - P - Q - R - S - T - U - V - W - X - Y - Z

Dysplasia, Fibrous

Abstract

You are reading a NORD Rare Disease Report Abstract. NORD’s full collection of reports on over 1200 rare diseases is available to subscribers (click here for details). We are now also offering two full rare disease reports per day to visitors on our Web site.

View Full Report

Synonyms of Dysplasia, Fibrous

No synonyms found.

Disorder Subdivisions

Monostotic Fibrous Dysplasia; Jaffe-Lichenstein Disease
Polyostotic Fibrous Dysplasia

General Discussion

Fibrous dysplasia is a term that refers to either a group of chronic conditions featuring cystic bone growth that may arise from abnormal bone development or to a disease of bone marrow (medullary bone) characterized by benign cysts. Fibrous dysplasia is characterized by uneven growth, pain, brittleness, and deformity of the affected bones. This disorder may involve a single bone (monostotic fibrous dysplasia or Jaffe-Lichtenstein disease) or may affect multiple bones (polyostotic fibrous dysplasia). Fibrous dysplasia is usually evident during childhood, and the bone lesions usually stop developing at puberty. These lesions may be painful, deforming and widespread. The bones most often affected are the ribs, skull, facial bones, thigh bone (femur), shin bone (tibia), upper arm (humerous), and pelvis. Occasionally, the bones in the spine (vertebrae) are affected. Some, but not all, affected individuals experience repeated bone fractures. The exact cause of fibrous dysplasia is not known.

Organizations related to Dysplasia, Fibrous

Fibrous Dysplasia Foundation, Inc.
- 15 Browns Court SE
- Washington, DC 20003
- Phone #: 202-547-3288
- 800 #: N/A
- e-mail: info@fibrousdysplasia.org
- Home page: http://www.fibrousdysplasia.org
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Phone #: 301-251-4925
- 800 #: 888-205-2311
- e-mail: N/A
- Home page: http://rarediseases.info.nih.gov/GARD/
Madisons Foundation
- PO Box 241956
- Los Angeles, CA 90024
- Phone #: 310-264-0826
- 800 #: N/A
- e-mail: getinfo@madisonsfoundation.org
- Home page: http://www.madisonsfoundation.org
MAGIC Foundation
- 6645 W. North Avenue
- Oak Park, IL 60302
- Phone #: 708-383-0808
- 800 #: 800-362-4423
- e-mail: mary@magicfoundation.org
- Home page: http://www.magicfoundation.org
MUMS National Parent-to-Parent Network
- 150 Custer Court
- Green Bay, WI 54301-1243 USA
- Phone #: N/A
- 800 #: N/A
- e-mail: mums@netnet.net
- Home page: http://www.netnet.net/mums/
NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
- Information Clearinghouse
- One AMS Circle
- Bethesda, MD 20892-3675 USA
- Phone #: 301-495-4484
- 800 #: 877-226-4267
- e-mail: NIAMSinfo@mail.nih.gov
- Home page: http://www.niams.nih.gov/
NIH/Osteoporosis and Related Bone Diseases National Resource Center
- 2 AMS Circle
- Bethesda, MD 20892-3676 USA
- Phone #: 301-495-4484
- 800 #: 877-226-4267
- e-mail: NIHBoneInfo@mail.nih.gov
- Home page: http://www.bones.nih.gov
Paget Foundation
- P O Box 24432
- Brooklyn, NY 11202
- Phone #: 212-509-5335
- 800 #: 800-237-2438
- e-mail: pagetfdn@aol.com
- Home page: http://www.paget.org

The information in NORD’s Rare Disease Database is for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional. NORD’s reports provide a brief overview of rare diseases. For more specific information, we encourage you to contact your personal physician or the agencies listed as “Resources” on this report.

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.